There are children of different backgrounds affected by Tay-Sachs Disease. We made this page in honor of DJ's friends who share the same disease.





Shannon O'Lear

November 22, 1993 - February 5, 2002

Shannon lived in Michigan with her parents, Joan and Patrick. We met Shannon when she was seven years old at the Tay-Sachs conference in Florida.


Joshua ("J.J.") Hein

September 7, 1995

J.J. lives in California with his family. 


Michaiah Rain Reed

January 31, 1996 - March 22, 1998

Michaiah lived in California wth her parents, Eric and Amanda. She had an extensive web site with a lot of helpful information and links. Michaiah's beautiful page inspired us to make one for DJ.

Shawn Drozd

March 14, 1996 - March 5, 2002

Shawn lived with his parents, Marilyn and Dwayne, in Texas. He has a brother named Shane and a sister named Shannon. Check out Shawn's story at his website.

David John Harris

June 26, 1996 - December 12, 2002

David lived in England with his parents, Theresa and Paul. He has older sisters named Caroline and Rachael. He has older brothers named Alan and Nick.

Emily Jones

July 15, 1996 - October 5, 2001

Emily lived in Alaska with her parents, Karla and Ken. She has a younger brother named Daniel.

Nicole Hunter

August 29, 1996 - February 21, 2001

Nicole lived in Colorado with her parents, Annette and Jim. Nicole has an older brother named Robert and an older sister named Amy.

Kyle Hesselbrock

October 2, 1996 - July 7, 1999

Kyle lived in Ohio with his parents, Suzanne and Andy. He has a younger sister named Halia.

Talia Miller

October 2, 1996 - July 19, 1999

Talia lived in California with her parents, Peter and Anne. She has a younger sister named Rebecca and a younger brother named Theo.


Colton Dean

March 8, 1997 - February 15, 2001

Colton lived in Alabama with his parents, Mike and Tina. Colton has a younger brother named Zach. This photo was taken at the NTSAD Family Conference in 1999. Tina's favorite flowers are tulips. Check out Colton's amazing website.

Alyssa Gold

May 30, 1997 - March 17, 2001

Alyssa lived in New Jersey with her parents, Dana and Gary, and her brothers and sisters - Marc, Jaime, and Jessica.

Purvesh Mandalia

June 14, 1997 - January, 2001

Purvesh lived in India with his parents, Jitendra and Swati. This photo shows Purvesh in Lord Krishna dress, when he was 11 months old.

Conner Joseph Lewis Jessen

June 25, 1997- January 4, 2000

Conner lived in Phoenix, Arizona, with his parents, Joe and Heather. Conner has a younger brother named Wil. This picture was taken at Conner's second birthday party.

Joshua (Joshy) Height

July 19, 1997- November, 1999

Joshy lived in Indiana with his family and has a younger sister named Jasmine.

Nickolas Du Vall

August 5, 1997- July 12, 2000

Nick lived in Iowa with his parents, Joel and Rhonda. He has a big sister named Samantha and a baby brother named Theo. 

Vincent Cassady, Jr. (Vincey)

September 14, 1997- May 13, 2001

Vincey lived in Maryland with his parents, Vince Senior and Dawn. This photograph was taken when he was just over a year old. 

Emma Faith Zimmerman

September 18, 1997 - November 18, 2000

Emma lived with her parents, Eric and Carol, and her younger brother, Jackson. This photo was taken when Emma was 8 months old.

Otto and Elmo Mononen

November 24, 1997

Otto and Elmo are twin boys who lived with their parents, Riitta and Jari, in Finland. They have an older brother named Joel. Otto passed away in November of 2000, and Elmo passed away on May 5, 2002. Take a look at their lovely photo album.


Ruben Suarez, Jr. (R.J.)

January 18, 1998 - December 26, 2001

R.J. lived in California with his parents, Ruben Senior and Ingrid. RJ has a younger sister named Robyn and a younger brother named Ryan. This photo was taken at Christmas when R.J. was 11 months old. R.J.'s home page includes lots of beautiful photos and a journal of medical treatments since his diagnosis.

Emily Catherine Wells

March 22, 1998 - June 17, 2001

Emily lived in Indiana with her parents, Lisa and Ron. She has a younger brother named Richard. This photo was taken when Emily was three years old. She was sitting by the pool enjoying the Florida sunshine.

Lila Levine

April 2, 1998 - March 9, 2001

Lila lived in Ohio wirh her parents, Erika and Kevin, and her brother, Gray. This photo was taken at Thanksgiving when Lila was 2 1/2 years old.

Thomas Hayden Lord

April 10, 1998 - December 22, 2000

Hayden lived in New York City with his parents, Tim and Alison. He has a younger sister named Annie. Hayden's family has established The Cameron and Hayden Lord Foundation. The Foundation aims to raise awareness of genetic diseases, to support research initiatives, and to provide coping resources for families with terminally ill children. Please visit this website.

Harry Hoffman

June 7, 1998 - February 17, 2001

Harry lived in New York with his parents, Sharon and Steven. He loved his younger brother, Jake, and his dog, Stella.


Emma Irene Spaniol

January 16, 1999 - July 14, 2001

Emma lived in Illinois with her parents, Jim and Teri. She has two older brothers named Donnie and Jack.

Adam Wilson Davis

February 26, 1999 - August 28, 2001

Adam lived in San Diego, California, with his parents, Bonnie and Barry. He has a younger brother named Jeremy.

Jack Allwood

March 21, 1999 - December 25, 2002

Jack lived in England with his mum Cathy and his brother Mark.

Cameron Patterson Lord

May 4, 1999 - May 10, 2001

Hayden Lord's father, Tim, has a twin brother named Charlie. Charlie's daughter and Hayden's first cousin, Cameron, was also diagnosed with Tay-Sachs. Cameron lived in Massachusetts with her parents, Charlie and Blyth, as well as her sisters, Taylor and Eliza. Cameron's family established the Cameron and Hayden Lord Foundation to raise awareness, to support research initiatives, and to provide coping resources for families with terminally ill children. Please visit their website.


Brandon Castillo Nava

May 9, 2000

Brandon lives in Mexico with his parents, Carlos and Patricia.


Abdaullah Al-Mesned

April 2, 2001

Abdaullah lives in Jordan with his parents, Naif Brakat and Sozan Hamad. He has a younger sister named Ezaldine. Although he exhibited symptoms at an early age, he was diagnosed with Tay-Sachs when he was 14 months old.